Tina Evans, from the Gwendraeth Valley in Carmarthenshire, is a self-confessed adrenaline junkie.
The 38-year-old blogger and motivational speaker hand cycled from Cardiff to Paris last year to raise money for adaptive sports.
She was diagnosed with Friedreich’s ataxia, external at 16, a condition that progressively damages the nervous system.
“It’s really important to have a suitable chair to live every day like normal, just to get out and about and do the things I want to do,” she added.
The disability advocate said the NHS wheelchair she got in 2022 meant she needed help with “simple things that people take for granted, like going to the toilet independently” .
She added: “At the moment, because my chair is not suitable, I’m not always able to do that… it’s not much to ask for, really.”
Her friends and family raised £3,000 towards a new electric chair, with Tina paying an extra £2,000.
She said it would have been “really useful” to have a personal budget scheme when she was getting quotes for her powered chair.