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Home Health

‘My autistic son had no safety net when in crisis’

December 10, 2024
in Health
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Family handout Declan Morrison holding the hand of someone who is not in shot. He is wearing a royal blue T-shirt and is smiling animatedly at the person holding his hand to the right of shot. He has dark brown hair and dark eyes.Family handout

Declan Morrison’s father said the 26-year-old had enjoyed listening to birdsong at twilight

The family of a man who died after he repeatedly banged his head against a wall in a mental health suite said there was no “safety net” for people with their son’s needs.

Declan Morrison, 26, from Cambridge, was autistic, had severe learning disabilities and attention deficit hyperactivity disorder.

In the hours before his death, he was left naked in a room with CCTV cameras, but his family said the alarm was only raised after he was found unresponsive by staff.

His parents, Graeme and Sam Morrison, are now calling for answers about what went wrong with their son’s care.

Mrs Morrison said: “He was left to his own devices in a surrounding that he couldn’t understand, with no stimuli, bright lights and bare walls.”

In March 2022, Declan spent 10 days in the Section 136 mental health assessment suite, as there were no beds available across the UK.

But he could not cope with the austere, clinical environment which, under the Mental Health Act, should be used for a maximum of 24 hours.

The suite was described by coroner Simon Milburn as “wholly inappropriate” for Declan’s needs.

Steve Hubbard/BBC Declan's sister Kaitlyn, mother Sam and father Graeme, standing together in front of trees shedding their leaves. Kaitlyn is in her 30s and is wearing a red jumper, while Declan's mother is wearing a patterned green top and has blue rimmed glasses. His father has grey hair, glasses and a light beard and is wearing a black rain jacket, a purple shirt and grey suit trousers. They are looking at the camera seriously.Steve Hubbard/BBC

Declan’s family said his autism meant he had had little concept of danger

Mr Morrison believed the decision to rely on CCTV and not interact with Declan might have “exacerbated the situation”.

The coroner said staff in the facility had not been appropriately trained to care for patients with learning disabilities.

Mrs Morrison said she only found out something was wrong with Declan on 18 March 2022 when he was in the ambulance.

“To find out actually your son now needs a brain operation to live – it was horrifying,” she said.

Declan underwent emergency surgery but never recovered. He died on 2 April 2022.

Family handout Declan Morrison during a car journey, lying on the lap of his sister Kaitlyn. She is stroking his shoulder and his hair with her other hand. She is looking at him lovingly. Kaitlyn has bobbed brown hair and her seatbelt on and is wearing a blue t shirt with gold writing on it. Declan has a checked, short sleeved shirt on.Family handout

Declan’s family said he had enjoyed car trips and would be excited when his father showed him the keys

From 2014 to 2021, Declan lived in Sunndach House near Peterborough, run by Kisimul, a company owned by a Luxembourg-based investment fund.

In 2019, following a review of Declan’s needs, it was concluded the facility could no longer provide the appropriate level of care to protect him.

Yet in 2021 Declan was still living in Sunndach House.

Declan’s family said his behaviour had worsened after some of his carers left to work at a nearby Amazon warehouse for an extra 50p an hour.

“Something as simple as 50p is making a difference, and it’s affecting our children,” Mrs Morrison said.

Sixty-seven facilities across the UK were approached to care for Declan, but none were able to offer him a placement

At the same time Declan was struggling to understand the loss of familiar carers, his family said his medication was also changed.

In evidence given by an independent psychiatrist at his inquest in October, the jury heard how side effects to the new drugs could have made his behaviour worse.

Family handout Declan running about near the seafront in Skegness. He is wearing a blue tracksuit and black trainers. A Ferris wheel and funfair in the backgroundFamily handout

Before the pandemic, Declan went on a number of trips in a minibus with his carers at Sunndach House

In May 2021, Declan was moved to Yewdale Farm in Willingham, Cambridgeshire, a residential care home run by CareTech Community Services.

A safeguarding report entitled Something has to Change, which was compiled by the Cambridgeshire and Peterborough Safeguarding Partnership after Declan’s death, noted there was a high level of agency staff caring for him.

Yet his father said Declan had “spent most of his time on his own as they [staff] couldn’t interact with him.”

CareTech said when Declan had been “responsive” to staff’s engagement, they would directly support him. If he did not want to interact, staff would sit in an adjoining room and observe him through a window.

At Yewdale Farm Declan had jumped over fences and assaulted a staff member.

In February 2022, CareTech said that it could no longer meet Declan’s needs and he needed clinical care.

Sixty-seven facilities across the UK were approached to care for Declan, but none were able to offer him a placement, according to the family’s lawyer.

In a letter to the government and the NHS, the coroner said: “Demand for such placements outstrips supply – providers are effectively able to ‘pick and choose’ who they offer placements to.”

“It seems wrong that a care provider can, at a drop of a hat, remove care, because there’s certainly no safety net behind that, because it’s just not provided for by local government,” Mr Morrison said.

“It can’t just be as simple as ‘we can’t keep your son or daughter safe’.”

Caretech said it did not “pick and choose” its residents.

Family handout Declan Morrison sitting on a large netted, basket style swing. He is mid swing and is looking at the camera. He is wearing a black T-shirt and blue jeans. He has both of his hands by his sideFamily handout

Declan loved lying on basket swings and being pushed by his family and carers

In March 2022 Declan suffered an episode of heightened anxiety and he was detained by police officers under the Mental Health Act.

He was taken to an emergency “place of safety”, known as Section 136 suite, on the site of Fulbourn Hospital in Cambridgeshire.

The suite is designed for patients awaiting a mental health assessment. Declan stayed there for 10 days instead of the stipulated 24 hours.

Declan’s parents were in Aberdeen at the time but his father said they had been told he was “doing fine”.

‘Repeatedly hit his head’

Steve Hubbard/BBC Saoirse Kerrigan is wearing a dark blue coat and a grey T-shirt. She has light pink coloured almost transparent glasses and has short bobbed mousey blonde hair. She is looking at the camera and is photographed outside. Steve Hubbard/BBC

The family’s solicitor, Saoirse Kerrigan, said Declan repeatedly hit his head against the walls and floor while in crisis

Saoirse Kerrigan, the family’s solicitor, said Declan had begun “bouncing off the walls”, which resulted in a catastrophic brain injury.

Ms Kerrigan, from law firm Leigh Day, said: “These injuries were sustained while Declan was being monitored by eight CCTV cameras and under 24-hour observation by nursing staff located within the site.”

She added he had been “growing increasingly agitated and repeatedly hitting his head”.

FAMILY HANDOUT Declan with his family. His grandparents are also in the picture while Declan is looking to the side and wearing a black T-shirt. Declan's sister Kaitlyn has sunglasses on her head and is smiling, the rest of the family are also smiling, they've all positioned themselves around Declan.FAMILY HANDOUT

Declan’s family said his death had left a “huge void” in their lives

‘Highest priority’

The coroner’s prevention of future deaths report said the mental health suite had caused Declan to go into deeper crisis and “ultimately this resulted in his death”.

Cambridgeshire County Council and the NHS in Cambridgeshire and Peterborough said they accepted this.

Both organisations said a learning disability and autism improvement programme would be rolled out from spring 2025.

Cambridgeshire and Peterborough NHS Foundation Trust, which runs mental health services, said it had tightened processes to improve patient care when someone spends more than 24 hours in the Section 136 suite.

Kisimul acknowledged problems with the “loss of key employees”, which it said had been partly caused by Brexit and competing industries.

Nicky Cooper, Kisimul’s director of quality and practice, said the welfare of people the service helped was the “highest priority”.

The Department of Health and Social Care said the new Mental Health Bill would “improve the monitoring of people with learning disabilities and autism who may be at risk of going into crisis”.

The bill would legally require the NHS and local authorities to ensure the needs of people like Declan were met without detaining them in hospital.

NHS England said it had drawn up guidelines and was “carefully considering” the coroner’s report.

  • If you have been affected by this story or would like support, you can find organisations which offer help and information at the BBC Action Line.

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